© 2024 MICHIGAN PUBLIC
91.7 Ann Arbor/Detroit 104.1 Grand Rapids 91.3 Port Huron 89.7 Lansing 91.1 Flint
Play Live Radio
Next Up:
0:00
0:00
0:00 0:00
Available On Air Stations

State adds "bubble boy disease" to newborn screening panel

The state of Michigan will now screen newborns for Severe Combined Immunodificiency.
Stevenfruitsmaak
/
wikimedia commons
The state of Michigan will now screen newborns for Severe Combined Immunodificiency.

The state of Michigan is now screening newborn babies for a deadly disorder that affects the immune system.

Severe Combined Immunodeficiency – or SCID– is often called “bubble boy disease.” It became widely known after a Texas boy lived with the illness for 12 years, most of it in a sterile bubble to avoid infections.

The disorder affects one in every 50,000 children. If it’s left untreated, the disease usually kills children before their first birthday. But bone marrow transplants in the early months of life can allow children to live into their 20s and sometimes much longer.

The Michigan Department of Community Health says six other states already screen for the disorder.

 

Sarah Hulett is Michigan Public's Director of Amplify & Longform, helping reporters to do their best work.